Danielle Degelman

Prader-Willi Syndrome

Posted on: February 16, 2011

My cousin, like Sonny, also has PWS. When she was born, she had hypotonia, or “floppy muscle syndrome”. Holding my cousin was like holding a sack of potatoes–heavy, limp, and almost lifeless. She finally learned to walk at two years old.

Now that she is three, she has just started to receive that constant feeling of “hunger”, which may lead to obesity later in life. As she develops, her parents may also notice a huge delay in speech, high pain tolerance, an IQ in the 50-70 range, poor coordination and motor development, excessive sleeping patterns, and scoliosis (curvature of the spine).

As teachers, what can we do to meet the needs of children with PWS? How can they become welcomed and contributing members of our classrooms? How can our teaching and intervention ensure their success? Please post your ideas!

Here are some websites that offer more information about PWS:

http://www.fpwr.ca/

http://www.pwsnetwork.ca/pws/index.shtml

http://www.nlm.nih.gov/medlineplus/ency/article/001605.htm

http://en.wikipedia.org/wiki/Prader%E2%80%93Willi_syndrome

http://www.medicinenet.com/prader-willi_syndrome/article.htm

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"Let us think of education as the means of developing our greatest abilities, because in each of us there is a private hope and dream which, fulfilled, can be translated into benefit for everyone and greater strength of the nation." -- John F. Kennedy

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